Research and Policy
SURVEY NOW CLOSED.
Calling all data collectors and researchers in Australia!
Have you ever been involved in …
- collecting information about any people in Australia in formal or informal contexts?
- designing, conducting, and/or analysing general population research?
- designing, conducting, and/or analysing research with specific populations?
If you said ‘yes’ to any of these questions, we invite you to share your experiences in the first national survey of Australian data collection and research practices on the inclusion of lesbian, gay, bisexual, trans, and intersex (‘LGBTI’) populations and sexuality, gender, and bodily specific populations beyond these labels.
We are conducting the first national survey of research practices in Australia as part of a research team headed by Dr Y. Gavriel Ansara at the National LGBTI Health Alliance. We would appreciate if you would share this e-mail with your department.
‘LGBTI’-specific research or data collection experience is NOT necessary to participate in this survey.
Q: What is the purpose of this research?
A: This survey aims to explore inclusion and barriers to inclusion of lesbian, gay, bisexual, transgender, and intersex (LGBTI) people and sexuality, gender, and bodily diverse people and communities in Australian research. The survey is designed to explore researchers’ practices regarding inclusion and the barriers that researchers may face in designing research that is inclusive of people’s genders, bodies, sexualities, and relationships.
Q: How long will it take to participate?
A: Most people will find that the survey takes around 30 minutes to complete.
Q: Who is conducting this research?
A: This research is being conducted by a survey development group constituted for this project by the National LGBTI Health Alliance’s Research Ethics & Standards Team. Group members participate as individuals rather than as representatives of organisations. Thus institutional affiliations are provided for informational purposes only.
As of 2015, the Research Ethics & Standards Team Members include:
Gávi Ansara, Manager of Research & Policy, National LGBTI Health Alliance
Israel Berger, Medical Student & Course Tutor, Sydney Medical School, University of Sydney
Vivienne Cass, Adjunct Associate Professor, Sexology Program, Curtin University
Atari Metcalf, Evaluation Manager, ReachOut
Maria Pallotta-Chiarolli, Senior Lecturer in Social Diversity in Health and Education, Deakin University
Elizabeth Smith, Research Officer, ARCSHS, La Trobe University
Shaun Staunton, LGBTI Communities Project Manager, beyondblue
If you have questions or concerns about the survey, please contact Dr Gávi Ansara (email@example.com).
Q: Who is funding this research?
A: This survey has not been funded by any university or external research funding body.
Q: Has this survey gone through any form of ethical review?
A: Yes. The Alliance’s Research Ethics & Standards Team provided internal ethical review through a formalised internal application process. Members of the survey development group were not members of the group that reviewed and approved this survey.
Q: Why has the survey not been reviewed by a human research ethics committee at a university or external research funding body?
The purpose of the survey is to undertake public consultation about data collection and research practices. It is being conducted by the Alliance, a non-profit community organisation. The survey does not constitute a clinical trial or medical research and no health information is being collected. Throughout Australia, non-profit organisations like the Alliance routinely conduct community surveys and consultations to advise their work and shape organisational policy.
If you have questions or concerns about the conduct of the study, please feel free to contact Dr Maria Pallotta-Chiarolli (firstname.lastname@example.org).
Q: What are the potential benefits of my participation?
A: This survey will provide you with the opportunity to reflect on your own research practices. This reflection could lead you to develop an increased understanding of inclusive practice. The results of this study will be used to inform guidelines for LGBTI-inclusive research practice.
Q: What are the potential risks of my participation?
A: Although there are no likely risks to participating in this survey, participants of any survey may experience discomfort as a result of questions about their behaviours and practices. If you experience discomfort, you are free to save the survey and return later or to exit the survey entirely.
Q: Will my information be kept confidential? What will you do with my information?
A: Your participation is entirely voluntary and confidential. No identifying details will be collected from you, and the resulting data will be anonymous. Results will be reported in aggregate with no identifying details. The anonymous data will be kept for five years after the last publication resulting from the study, after which time the data will be securely destroyed.
Q: How can I receive updates when the results are out and how will the findings be shared?
A: If you would like to join our list for updates on the results and resources developed from this study, please send an e-mail to email@example.com with “[RESEARCH LIST]” in the subject title. Findings will be shared in multiple formats with the aim of making the results as widely accessible as possible.
Q: Can I discuss the survey with others?
A: You may give the survey link to others and tell them that we are looking for participants, but we ask that you not discuss the survey content. This is because we are trying to assess current research practices and knowledge.